Syndromes Without A Name (SWAN)
SWAN Australia provides information, support, connection and systemic advocacy for families caring for a child with an undiagnosed or rare genetic condition. We provide information sessions, peer-to-peer events, and networking opportunities to help SWAN families learn, advocate, connect and reduce the pain of isolation, frustration and anxiety.
SWAN advocates for increased funding for genetic research, timely free and equitable access to genomic testing and decreased waiting periods for families to receive a diagnosis. We provide a public voice for families, campaigning for improved disability services, better community education and greater resources and pathways so SWAN children can thrive.
More info at SWAN Australia
Blog posts
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(VIC) Deep Creek Eco Park
🌟 RareWear Recommendations: Deep Creek Eco Park, Pakenham Edition! 🌈Looking for the perfect spot for a family outing? Look no further than Deep Creek Eco Park in Pakenham! 🌳👨👩👧👦 Nestled...
(VIC) Deep Creek Eco Park
🌟 RareWear Recommendations: Deep Creek Eco Park, Pakenham Edition! 🌈Looking for the perfect spot for a family outing? Look no further than Deep Creek Eco Park in Pakenham! 🌳👨👩👧👦 Nestled...
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(VIC) Jells Park
Looking to embark on a fantastic family adventure? Look no further than Jells Park! Nestled in Wheelers Hill, Oakes Picnic Ground, and Jells Park South, this picturesque destination offers an...
(VIC) Jells Park
Looking to embark on a fantastic family adventure? Look no further than Jells Park! Nestled in Wheelers Hill, Oakes Picnic Ground, and Jells Park South, this picturesque destination offers an...
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Book Week (2022)
Rocking Book Week in a Wheelchair Adapted costume
Book Week (2022)
Rocking Book Week in a Wheelchair Adapted costume